Best of 2023
Dec 20, 2023
This odyssey of parenting, caregiving, and disability can be so many things: isolating, overwhelming, joyous, lonely, full, exhausting, exhilerating. The extreme ups and downs; the highs and lows. You can't fully understand it unless you live it.
This episode explores why professional family to family support is so...
Why We Must Stop Labeling People High-Functioning/Low-Functioning
Nov 22, 2023
It's natural for parents to want their children to reach their full potential. But who decides what that is? And at what cost?
In part two of my interview with Heather Trammell, we explore how dangerous societal expectations can be; and how inaccurate and harmful it is to label people as high-functioning and...
Everything You Need to Know About IFSP and Applying for Funds
Oct 24, 2023
When you have a child with a disability, you become more than just a parent. You become a caregiver. And many of us “parent-caregiver hybrids” have a lot to learn about supporting a child with a lifelong disability.
Medicaid waivers can be one of the hardest things to understand. Under broad federal guidelines,...
What to Expect When the Unexpected Happens
Sep 26, 2023
The wishes, hopes, and dreams of expectant parents are many.
Their baby having a lifelong disability usually is not one of them.
When that happens, it can be devastating for families.
The staff and volunteers at the Center for Family Involvement have family members with a disability. Some of us have disabilities....
Back to School Special
Aug 12, 2023
The back to school grind is tough for everyone, but it’s over in a flash and parents get a breather during school hours.
Except when they don’t.
The parents and caregivers of students with disabilities live in back to school mode all year long.
It’s almost like Santa preparing for Christmas. The first day of...