May 23, 2024
In this compelling episode, we sit down with Abbey Benjamin,
an inspiring mom to Tommy and Avery Joy.
She is a wife to Chris, a nurse, dance teacher, and
self-published children's book author.
Her daughter, Avery Joy, has been diagnosed with
adenylosuccinate lyase deficiency (ADSLD), a rare genetic disorder
that impacts metabolic function and development.
Abbey shares the emotional journey of receiving such a rare
diagnosis and the daily realities of managing Avery's unique
needs.
She discusses the importance of finding joy, advocacy, and the
role of community support.
Join us as we explore the life of Avery Joy, and the joy of
her story!
Through their extraordinary journey we gain valuable insights
into living with and supporting a child with ADSL deficiency.
To follow Abbeys Journey onnect with her on Instagram @abbeybenj
To check out her Children's Books
If you'd like to share your story, or feel stuck or
defined by your circumstances please reach out!
I'm here to share our voices, and help guide and
support any parents struggling in their journey.
You can connect with me on Instagram @felicia.sheline, find
me at www.feliciasheline.com
or email at support@feliciasheline.com
*Subscribe today, and let's reinforce that every story deserves
to be heard and we are here to embrace the
extraordinary within the ordinary.
*Intro and Outro Music Composed and Produced by Hudson
Sheline