Preview Mode Links will not work in preview mode

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Apr 4, 2019

Meredith, mom to now 8-year-old Lola, shares her experience with her daughter who was diagnosed with Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) shortly after she was three-years-old. However, their story didn't begin there.  

As an adventure, Meredith talks about how she and her husband moved to Costa Rica...

Jun 26, 2017

After a long pregnancy on hospitalized bedrest, Kelli describes the birth and first year of her twin girls, one of which was born with two genetic conditions, Caudal Regression Syndrome and Goldenhar Syndrome. The journey to diagnose these conditions was a long one, and Kelli talks about what that process was like, and...