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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist


Mar 2, 2022

Today we have another story from a heart mama. I wanted to fit them all into February, but I couldn't quite make it. So we are just creeping into March here with Dimitra and her story. Her son also had transposition of the great arteries (TGA), which we heard about in last week’s episode. It’s interesting to see where the two stories are parallel and where they differ. 

In this episode, we talk about…

[1:51] Dimitra’s family and background

[3:37] Adapting to changes outside of our control

[5:19] Getting the diagnosis of transposition of the great arteries (TGA)

[14:05] Pregnancy after confirming a heart defect

[18:59] Dimitra’s son’s birth 

[24:01] Coping with setbacks after birth

[28:49] Finding out about her son’s coarctation of the aorta

[30:52] Dimitra’s son’s surgeries

[39:36] Life after two heart surgeries

[43:30] What Dimitra’s son has taught her

[48:30] How Dimitra processes and copes with her experiences now

 

Connect with Dimitra:

Instagram

Website

 

Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

 

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.

 

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