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Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

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  2. Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord and Caudal Regression Syndrome

Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord and Caudal Regression Syndrome

Nov 8, 2023

Join Katie Taylor in an emotional conversation with Mackenzie Carolin as they discuss the unexpected medical journey she faced with her daughter. Learn how Mackenzie navigated the complexities of her child's healthcare needs and discover the importance of trust and human connections during challenging times. This episode of Child Life On Call provides valuable insights and support for parents who find themselves in similar situations. Don't miss this heartwarming and inspiring discussion that highlights the power of advocacy and the strength of a supportive community. Join us now and start watching to gain valuable knowledge and find solace in knowing you're not alone in your journey.

In this episode, you will be able to:

  • Discover the power of your personal experiences in transforming your child's healthcare journey.

  • Unlock the importance of building human connections to enhance your child's medical care.

  • Navigate the complexities of your child's healthcare with confidence and clarity.

  • Advocate for your child with disabilities and ensure they receive the support they need.

  • Learn how unexpected medical conditions can shape and strengthen your parenting journey.

My special guest is Mackenzie Carolin.

Mackenzie Carolin, a parent from Florida, joins us on this episode of Child Life On Call. Mackenzie shares her personal journey as a mom navigating unexpected medical conditions with her child. With a background in the medical field and surrounded by family members in healthcare professions, Mackenzie brings a unique perspective to the challenges faced by families in similar situations. From the initial shock of discovering her daughter's condition to the emotional rollercoaster of hospital visits and uncertainty, Mackenzie's story highlights the importance of trust, human connections, and advocating for your child's healthcare needs. Join us as Mackenzie shares her experiences and provides valuable insights for parents in similar situations.

The key moments in this episode are:
00:00:05 - Introduction

00:01:13 - The Power of One-on-One Conversations

00:02:47 - Tips for Effective Doctor's Visits

00:03:17 - Introduction to Mackenzie Carolin

00:05:17 - Unexpected News at the Hospital

00:16:05 - Empowerment through Seeking Second Opinions

00:17:05 - Finding Her Voice in Advocating for Her Child

00:19:30 - Becoming an Advocate for Other Moms

00:21:43 - The Power of Mom-to-Mom Support

00:24:06 - Personal Growth and Learning from Liv

 

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