Nov 15, 2023
In this episode, you will be able to:
-
Discover the untold journey of NICU parents, gaining insights and understanding into their unique experiences.
-
Uncover the challenges of medically complex pregnancies, and learn strategies for navigating this complex journey with support and resilience.
-
Explore the support systems available for medical motherhood, and find out how to build a network of understanding and empowerment.
-
Gain invaluable insights and practical tips for navigating the complexities of special needs parenting, empowering you to advocate for your child's unique needs.
-
Learn the art of accepting uncertainty in medical diagnoses, finding peace and strength in the face of the unknown.
Hannah Parsons is the guest on this week's episode of Child Life On Call. She shares her personal journey as a mother to a child with Vactrel Association. Hannah has a diverse background, starting out as an actor and comedian before transitioning into editing and stagecraft. Living in Los Angeles with her husband and two-year-old son, Obie, Hannah has faced numerous challenges and complexities throughout her son's medical journey. From navigating a unique pregnancy without insurance to experiencing the unexpected during childbirth, Hannah's story sheds light on the emotional rollercoaster of motherhood and medical motherhood. Her determination, resilience, and unwavering belief in her son's well-being are truly inspiring. Tune in to hear Hannah's incredible journey and gain insights into the realities of special needs parenting.
The key moments in this episode are:
00:00:00 - Introduction
00:02:05 - Pregnancy and Diagnosis
00:06:14 - Birth and Initial Diagnosis
00:10:24 - Navigating the NICU
00:13:48 - Transitioning to Home
00:17:45 - Challenging Medical Conditions
00:19:20 - Unwanted Medical Procedure
00:23:37 - Feeling Unsafe and Disappointed
00:25:02 - Acts of Kindness and Support
00:26:33 - The Impact of NICU Nurses
00:34:54 - Gratitude for a Healthy Child
00:35:45 - Need for Resources and Support
00:36:50 - Navigating Post-Hospital Care
00:37:59 - Importance of Resources and Podcasts
00:45:12 - Diagnosis and Acceptance
Connect with Hannah here.
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.
Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
-
Give medicine to your child without it becoming a wrestling match
-
Prepare your child (and yourself) for a shot so they can feel less anxious
-
Create and use a coping plan for any medical appointment or procedure
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.