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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist


Jul 17, 2017

After arriving at her 20 week ultrasound, Abigail, her husband and mother were anxiously awaiting to hear the news of their first child’s gender. However, the appointment took a turn when they learned that their son would be born with Spina Bifida. Abigail talks to us about that experience and their journey since that life changing moment. They’d come to learn that their son also had hearing loss and she talks about the challenges associated with it.

 

Abigail expresses her feelings about Teak’s diagnosis, talks about the incredible six (AND A HALF) year-old boy that he has become, and gives great advice to parents facing similar challenges. You can follow along and connect with Abigail through her blog, www.theheadhouseatx.com.

 

She recommends connecting with a Spina Bifida group on Facebook, she specifically has benefited from meeting other parents here. She also spent a lot of time on BabyCenter's Spina Bifida group when Teak was born. 

Abigail also recommends the following resources:

www.hearingloss.org

https://www.livebinders.com/play/play?id=1666786 (This is the Texas Regional Day School for the Deaf and Hard of Hearing programs that Abigail referenced in her interview)

 If you would like to connect with Abigail, you can find her on Instagram or Facebook. She also blogs here and at Austin Moms Blog