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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Nov 24, 2021

My guest today is Carrie Holt. Carrie is one of those people who, when you talk to her, you feel like you’ve known her your whole life AND it feels like you’re there in the room with her.  She has such a great perspective on having a child with a diagnosis and special needs, and she also hosts a podcast called Take Heart Special Mom.  I’ll be sharing a bit about what I’m grateful for this Thanksgiving week, and then we will jump into Carrie’s story.


In this episode, we talk about…

[1:24] What I am grateful for

[4:07] About Carrie Holt

[5:16] Getting diagnoses of spina bifida and hydrocephalus

[8:43] The second half of Carrie’s pregnancy after these issues were discovered

[13:37] Bonding with a baby that has to have surgery right after birth

[19:30] A trip to the pediatric intensive care unit

[25:54] Coming home with a ventilator

[27:54] What Carrie wishes she had known at the beginning of this journey

[31:39] How Carrie’s other children have grown through this experience

[38:31] What Carrie’s son has taught her since he entered her life


Connect with Carrie:






Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.