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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist


Nov 10, 2021

Today I get to introduce you to Moira, the host of Surviving the Waiting Room - a podcast based on her experiences from learning how to be an advocate for her teenage children as they started to figure out their health issues. Although they have diagnoses now, there are no exact tests for Celiac Disease or migraines, so Moira has gotten really good at finding people to help give her information.  She has a lot of value to share about getting answers for your kids as well as about relating to teenagers and supporting them as they grow into young adults.

 

In this episode, we talk about…

[1:29] An introduction to Moira and her family

[2:43] Getting a diagnosis of Celiac Disease

[4:51] Puberty and health problems

[5:44] Experiencing migraines

[7:41] Finding answers for unexplained medical issues

[11:28] Getting a diagnosis of Chronic Fatigue Syndrome

[13:14] Invisible illness

[16:50] Treatment for Chronic Fatigue Syndrome

[19:04] Supporting teenaged and adult children with medical conditions

[21:11] Ehlers-Danlos Syndrome

[22:46] Self-care as the mother of children with chronic illnesses

[25:18] How these experiences changed Moira

[29:49] Considerations when sharing medical information about your children

 

Connect with Moira:

Podcast

Instagram

Facebook

 

Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

 

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.

 

Website: https://childlifepodcast.com

Merch: https://bonfire.com/store/childlifeoncall

Instagram: https://instagram.com/childlifeoncall

Facebook: https://facebook.com/childlifeoncall

Twitter: https://twitter.com/childlifeoncall

YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg