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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist


Feb 23, 2022

Here we are in the last week of February, which is heart month, and I am so honored to bring you Melissa’s story. We have discussed other heart defects before, such as tetralogy of fallot and hypoplastic left heart syndrome. This is the first time we are talking about transposition of the great arteries, or TGA. TGA is diagnosed in utero and requires surgery within days. I know Melissa’s story will bring so much value, comfort, and validation to other parents.

 

In this episode, we talk about…

[1:54] Melissa’s background and family

[3:29] Getting the diagnosis of of transposition of the great arteries (TGA)

[9:26] Melissa’s son’s birth and treatment after birth

[15:11] Melissa’s son’s surgery

[25:24] Stenosis after surgery

[29:15] A second surgery to patch arteries

[32:24] Inflammation of the thymus

[34:45] Recovery after two surgeries in two weeks

[37:15] What helped Melissa through this experience in the hospital

[42:00] Going home after five weeks in the hospital

[44:50] Update on Melissa’s son

 

Connect with Melissa:

Facebook

 

Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.

 

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