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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Apr 27, 2022

This is a very worthy repost episode, as April is Limb Difference Awareness Month. We first shared Ashlyn’s story over a year ago, but I wanted to bring it back. The two things that I continue to take away from this story is the true partnership between Ashlyn and her husband, as well as the importance of having fun with the cards you’re dealt. I encourage you to listen to her story, follow her on Instagram, and share her page and this episode so others can learn more about limb differences.

In this episode, we talk about…

[4:55] Ashlyn’s family

[6:07] Ashlyn’s pregnancy with her son

[14:47] Getting the results from the fetal MRI

[23:45] How Ashlyn and her husband renewed their partnership

[30:29] Myles’s birth and NICU stay

[41:17] Getting the diagnosis of VACTERL Association

[42:34] Bringing Myles home from the hospital

[49:37] How Ashlyn changed her mindset and coped with grief

[51:40] Connecting with other parents of children with special needs

[57:58] What Ashlyn has learned from her son

[1:01:24] An update on Myles

[1:03:25] Ashlyn’s advice for other parents



Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.