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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist


May 11, 2022

Today we have a guest co-host AND a guest! Our guest co-host is Sehreen Noorali, and you may remember her from Episode 112 of the podcast. Her younger daughter has some medical needs and has been through neurosurgery. Like Sehreen, our guest Michelle has also spent her fair share of time in the rehab setting. Her son, Gideon, was born with heart defects that required hospitalization.

 

In this episode, we talk about…

[6:25] Michelle’s family

[8:08] Discovering low oxygen levels in a newborn

[11:24] Receiving diagnoses: Tetralogy of Fallot, Pulmonary Atresia and MAPCAs

[15:34] Advocating for your child in the medical system

[18:31] Collaborating with your child’s care team

[26:12] Handling stress as a parent of a child with medical needs

[29:38] Creating community in the inpatient pediatric rehab setting

[35:44] How Michelle’s son has changed her

[38:45] An update on Gideon

 

CONNECT WITH MICHELLE:

Facebook

Instagram

 

CONNECT WITH SEHREEN:

Website

Instagram

 

Have you heard?  The Child Life On Call mobile app for parents, kids and their care team will be available in 2022.  Sign up to stay informed here.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges.  We are so glad you are here.

Website: childlifepodcast.com

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YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg