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Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Feb 26, 2018

In this first episode of the second season of this podcast, we hear from a self-proclaimed "crunchy granola mom" Nina, whose fourth child was born with what she calls "a funny shaped head." 

Nina goes on to describe her son's first few weeks of life and her appointments with her pediatrician and an osteopathic doctor. With little to no help from the osteopathic doctor, she trusted her instincts and returned to her pediatrician who then referred her to a surgeon at Children's National Medical Center in Washington D.C. and would learn that her son had craniosynostosis. 

Nina then discusses their surgical journey and all that in entailed. In addition to the stress of building a new business and homeschooling three other older children, Nina talks about the challenges and emotions that she felt at that time. She also talks about how her view of what a hospital is like has changed and how she talked to her older children about what Cohen was going through. 

She attributes the help of her friends and church congregation to helping her family cope with this experience. 

If you would like to follow along with Nina and her family, you can find her on Instagram or through her family's wellness business, True Whole Human